Jennie's MS Journey

Hi Everyone! Well it’s been a year today since I got my brand new immune system!! I can’t even believe it. I just returned back from a few days in Chicago determining if HSCT was successful up to this point. I’m happy to report great news! In the last 56 weeks (the previous year I … More One Year!!!

Hi! Just a quick update. I’m still feeling great and more like myself every day. No MS symptoms other than general tiredness in the evening but then I do get up early so I don’t think it’s anything to worry about. I got back my latest blood counts Sunday and they have gone down quite … More Month 9

Hi Everyone, Things are still moving in the right direction! My bloodwork is looking better, so much so that I get a two week break which my arms are very excited about:). My lymphocytes are very low but more in line with where they should be at this stage. I haven’t had any infusions of … More Update Day 230ish…

Hi Everyone! I have good news today! My cell counts have stabilized and it looks like the IVIG combined with several rounds of Neupogen have been successful. My absolute neutrophil count while still way too low is out of the serious danger zone. I am beyond relieved it is rectifying itself on its own without … More Almost 8 months!

Hi Everyone, It has been a while since I have updated the blog so it’s a bit of a mixed bag this month. Good News- It still does seem like disease progression has been fully halted. I have experienced NONE of the symptoms I was dealing with. Vision is 20/20 at all times of the … More 6 months post update

I hope everyone is having an awesome summer!! It’s been a while since I have posted. I decided to take a break until I had some good news to report:). So last time I was told I had a side effect from one of the drugs called latent onset neutropenia. It was frustrating as I’m … More Day 166

Hi Everyone, It’s been about a week since my last update. I ended up seeing a hematologist and I’m happy I did because my white blood cell count and my ANC dropped significantly. In fact, they kept me there until I was cleared for Neupogen by insurance, and I received that to try to boost … More Day +135

Hi Everyone, I have a new update today so thought I will fill everyone in before I forget everything I was told. As I stated in my previous post my white blood cell count had dropped last week. I attributed the decline to a small cold and fever I had a few weeks prior but … More Update Day +130

It has been a while since I have posted. I was concentrating on keeping up with the girls end of the year schedules but the exciting thing is I was mostly able to do that! I started this blog for two reasons. I wanted my family and friends to have a place to see how … More 4 Months Post Transplant