In September after received another MRI showing at least one new lesion, I decided to apply. I knew my chances were low but thought it couldn’t hurt. I gathered my medical records and test results and forwarded them all to Northwestern. About a week later I was told Dr. Burt thinks I may be a candidate and he would like to see me in a few weeks in Chicago. September 20th I got on the plane and hoped for the best. I had more MRI’s, more bloodwork, a physical exam and a meeting with Dr Burt. There were a lot of people there also hoping to be considered, it was pretty heartbreaking. Mostly women, about my age with young children just hoping for a chance at this. MS is a pretty sobering disease, the symptoms vary among each person but the fear of the future is something most of us share.
Dr. Burt came into my waiting room and was all business. I thought I could try to talk him into taking me but i learned quickly he wanted facts and to review those:). He asked me if I understood there is risks to this (then he explained those) and I told him I did understand. He then told me he saw a new lesion on my spine at C-3 that had developed within the past 3 months (since my last MRI) despite the Tysabri. He agreed to treat me off trial on a compassionate basis but that likely insurance will not cover it. The cost of this procedure and staying in Chicago with a caregiver is massive and its terrible that this prevents even those excepted from getting this done. I took all the information and flew home excited I had this opportunity, sad for those that didn’t, and scared to do it. I went home, and my husband and I decided this is my best bet and the next day I called to let them know we are ready to move forward in this process.
Jennie's MS Journey 