Looking back, there were moments when I should have realized that Jennie was a vampire. I told Jennie that this would be a good opening line for a novel, but she wasn’t amused. But what do you say when you are watching someone else’s blood traveling through a clear tube into your wife’s arm? I told the nurse to please request that Sister Mary Catherine’s blood be used in the transfusion. She also wasn’t amused.
So counts really starting dropping today. Hemoglobin wasn’t super low, but Dr Burt doesn’t like to see it go down too much. They expect the counts to drop again tomorrow and the day after so we will see if we need more blood. Jennie also received her final dose of Rituxan today. She has had a low fever off and on all day, but nothing over 100.2. I notice that the nurses are coming in a lot more frequently. Jennie says that today is her “most tired” day. The nurses want her to be careful not to fall. Steroids start to taper down starting tomorrow and will slowly go down over the next several days. Three days from now more neupogen. That one is not a crowd pleaser as it caused some serious bone pain the last time.
So clearly the blog is now out of control. Jennie is anxious to regain some strength as she is concerned about what I am writing. She keeps asking me to be very clear so people who are reading this and thinking about coming know what to expect. Let me say this, because Jennie is tough and handles pain pretty well… I think even as whipped she is and as bad as she is feeling, a year from now she is going to be much better than if she hadn’t done the procedure. Get educated and advocate for yourself. No one else will and this is an option that people should consider.
Jennie's MS Journey 