Hi! Just a quick update. I’m still feeling great and more like myself every day. No MS symptoms other than general tiredness in the evening but then I do get up early so I don’t think it’s anything to worry about.
I got back my latest blood counts Sunday and they have gone down quite a bit which was a bummer but I’m still at relatively safe levels. No medication was needed to boost them which was my main concern. Just might be a bit of a roller coaster the first year! I’m able to have a healthy friend or two over now though which has been nice!
My year checkup and MRI’s have been scheduled and I’m looking forward to tangible results I have halted disease. I will be going back to Chicago the first week of Feb for a few days. I hope to visit some others that just started their journey while I am there.
I have been speaking to many people about the trial and I just hope I am able to be informative. I’m torn as to whether it’s helpful or not but if I’m asked I’ll do my very best to provide the information I have. Because this is risky I don’t want to encourage risk so there is a fine line whether or not to recommend this. I’m not a medical doctor so it can be a little tricky.
Our family of people going through this received very sad news this week. Our friend Carole, after a long fight to get approval for HSCT developed a lung infection after receiving her stem cells. Sadly, her body just didn’t have the fighting power after the chemo to clear the infection. She passed away at the hospital in Chicago and all our collective thoughts and prayers go out to her husband, daughter and her beautiful family. I know she did this to be able to give everything to them and it’s really just so so sad. We all know the risks but you just hope it never happens:(.
This week I’m just grateful I can spend Thanksgiving with my family in a better place then I was this time last year.
Hope everyone enjoys the holiday!!!
Jennie's MS Journey 