Hi Everyone! Happy New Year! Just a quick update. Things are still looking very positive. I’m experiencing no MS symptoms and my eyesight is still 20/20. This is encouraging for me as I’m approaching the one year mark where I was told this time last year I likely would be in a wheelchair by now. I do continue to experience fatigue which could be the MS or just the extended recovery process. I’m trying to combat that in different ways and if anything sticks I’ll let you know. I start out the day at 100 percent but by the afternoon I still notice a significant decline in energy. I was told this is typical even through year 2. My cell counts also are improving. I do have below normal neutrophil and white blood cell counts, but nothing to panic over which is a huge relief. I just wash my hands a lot and avoid people I know are fighting a cold etc.My hormone levels are back to normal. That actually was one of the hardest parts of recovery. I just didn’t feel like my usual self with those levels all over the place!
I have been experiencing some intermittent hip pain and some dull aching. I’m chalking it up
to working out but as a precaution I will be getting an MRI to rule out AVN. This has been seen in a few other people in the trial. As usual, it is taking too long to go through doctors/insurance to get this accomplished.
I’m very grateful to just be running through the kids daily routines and living life normally! In early Febuary, I will go back to Northwestern and get testing and MRI’s to determine if progression has been stopped. It will be a huge relief to see something concrete showing success. I will continue doing this every year going forward. I’m expecting good news based on there having been no detectable relapses but with anything it is not guaranteed.
Anyway, as of today I’m still fairly confident I made the right decision. In my case, the biggest risk was not taking one.
Have a nice week!
Jennie's MS Journey 