Happy Valentine’s Day from Chicago! Ready to get day +6 underway. I am happy to report that they are weaning me off the steroids and that makes me very happy. I’m starting to deflate a bit which makes me feel more like myself. I got some platelets yesterday and that helped with the energy level … More Day +6

Good Morning!! Since all my days are morphing into one giant groundhog day, I think we skipped a day. Speaking of groundhogs….still bloated and still bald. Being bald has nothing to do with a groundhog but just noting;) Let’s see….. what’s new and exciting in my little isolation room (which thanks to everyone, looks pretty … More Day +5

Hi everyone.  The steroids have Jennie feeling “not so great” today.  As she puts it, it’s not her “best day.”  I think that the fact that the steroids have caused swelling in her face, or as Jennie calls it, “Puffer face syndrome” isn’t helping our cause.  I have told her this is a temporary state … More Day +3

I’m actually awake and coherent enough to type tonight, I bypassed one of the the meds  for a few hours so I could function a little better. My blood counts are doing exactly what they should, and they will continue to drop thru Sunday. Even showering feels like running a tough mudder. Ironically, killing the … More Day+2

Looking back, there were moments when I should have realized that Jennie was a vampire.  I told Jennie that this would be a good opening line for a novel, but she wasn’t amused.  But what do you say when you are watching someone else’s blood traveling through a clear tube into your wife’s arm?  I … More Day +1 Blood Transfusions – As Creepy As They Sound

We thought it would be helpful to list the items we found helpful while we were here for others who will soon be coming to Chicago: Roku stick and a netflix account.  A friend gave us the Roku stick and we had a Netflix account.  Great for good tv any time day or night A … More What To Bring To Chicago

Still Matt writing: So people have asked what a typical day looks like.  Jennie usually has a little more energy in the morning so we order a big breakfast.  She doesn’t have much of an appetite so I force her to eat a hardboiled egg and some bacon.  Then I eat whatever she doesn’t want … More Day -1

It’s Matt filling in.  Not a lot to report.  Jennie slept most of the day.  Part of it is the cumulative effects of the chemo.  They also changed up her nausea meds which I think are making her sleepy.  Tomorrow is the last day of chemo (if you don’t count rituxan as chemo) and one … More Day – 3

It’s everyone’s favorite guest blogger Matt back for an update.  Jennie’s energy started off strong over the last few days, but the chemo may be starting to catch up with her a little bit.  She was much more tired tonight vs. this morning.  So we did 100 squats this morning, but down to a 1/2 … More Day Feb 4th

Today has been busy so far. Woke up bright and early for bloodwork and an EKG at 6am, followed by a short walk around the floor and then got started. Im feeling ok from the infusion yesterday so they started me on a continuous iv of chemo and rATG that will run continuously until Tuesday. … More Day -5