Day +82

Hi Everyone! It’s been a bit since I have posted. Life has been busy with the end of the school year approaching and the awesome thing is I’ve been able to be a part of it:). We went to Yosemite over the break and I was excited to finish a few hikes in sunny weather … More Day +82

Day +52 update

Hi everyone, It’s been a while since I have written an update which is mostly because I am starting to get back into living life! Good news- My blood work is looking better and better each week. As my cell counts inch toward normal ranges, my energy seems to be increasing. I’m walking a few … More Day +52 update

Day +35 Update

I’ve been home for a few weeks so I thought it was time for another update… Good News!-STILL no MS symptoms. It’s pretty exciting that with all the various things I was dealing with, I’m feeling not one of those. My vision has remained 20/20 in both eyes since the transplant which has been nice. … More Day +35 Update

Day +20

I can’t believe I have already been home over a week and am 20 days post transplant! It’s nice getting back into the routine of things. A lot of hand washing is happening at our house and I’m doing my best to stay home and avoid public places…etc. I’m feeling better but a little disappointed … More Day +20

Happy to be home

I’ve been home almost two days, it’s awesome sleeping in my own bed and just hanging out. I’m feeling ok considering I think, but my plans of hitting the ground running are probably going to take a little more time. I can tell my body is just really fatigued and is going to slowly need … More Happy to be home

Sweet Freedom!

Last night I slept in a nice hotel bed across the street from the hotel! I was released yesterday. I engrafted all at once and my numbers looked safe enough to peace out. I really missed the tubes in my arm, the weird inflate/deflate bed and the beeping all night….sike. It was awesome walking outside … More Sweet Freedom!

Day +9

OK! On to a new a new day. Yesterday was tough on my stomach. A lot of nausea among some other pain and grossities I’ll spare my audience BUT…. It looks like I’m starting to engraft!! I am so excited. I woke up with my cell count above zero. 0.4 to be exact. It doesn’t … More Day +9

Day +8

I’m getting closer I hope, it’s day 8!!  Todays it’s possible to start seeing some engrafting but my white cell numbers this morning still show too low to count <0.001. So, my body still has some work to do. I’ll get my fifth shot to try to boost things along around noon. Because of those … More Day +8

Day +7

Good Morning Everyone. Stiiiilllll in Chicago. What fun is in store for today that I can share. Looks like I’ll be getting some blood/platelets. It is so nice Virgin Mary has agreed to share those with me a third time. I’m pretty nauseous today so I am drinking a coke and its 7am. I’m getting … More Day +7

VERY Cool Update

I was just sitting here in my room and a man was walking by in his gown/mask/gloves in the hallway and came in my room (majorly not allowed) with tears in his eyes. Like literally crying. I just looked at him wondering what was happening and he walked in and sat on my bed (way … More VERY Cool Update