Pre-Testing

This morning we headed to Chicago for the pre-testing phase.I followed orders and wore my mask the entire flight which was probably a good move because the guy next to me was coughing without even covering his mouth. I should have given him a mask! I will get bloodwork done, an EKG, echocardiogram, pulmonary functioning … More Pre-Testing

Washout period HCST

I currently am in arguably the riskiest part of this process. In order to get the procedure done I must agree to washout of the current medication for 6 months leaving me vulnerable to relapse. My doctors at UCSF were heavily concerned about this and lobbied Northwestern to allow for me to take a dose … More Washout period HCST

Started Tysabri

I started Tysabri Feb of 2016, it took 4/5 months being untreated to get to this place and it was entirely because insurance was being bullish and i would go as far to say unethical. The really sad fact here is that many people don’t have the resources or knowledge to fight these large companies … More Started Tysabri

Treatment

I was given a few options for treatment but the most efficacious drug was called Tysabri. It is a once a month infusion. It has done amazing things for those with MS even restoring mobility in certain individuals who had lost it. I opted for this drug. I was warned though. There is a blackbox … More Treatment

Diagnosis 2015

My name is Jennie and I was diagnosed with MS the summer of 2015. Starting in 2013 I began noticing some things that didn’t seem right, in 2013 for about a month I noticed some shaking of my hands, I mentioned it to my doctor. He did some bloodwork to check my thyroid and all … More Diagnosis 2015