Jennie's MS Journey

OK. So I’m still not thru today yet. I checked in at the hospital at 7:30 this morning and am in my room. Its pretty nice and luckily because of the germ issue everyone has their own room and it has a nice tv.

It was hard this morning because we had an issue finding a vein (which is weird because I get infusions all the time and never problems) and let’s just say my arms are going to be very bruised tomorrow but eventually it worked. That delayed things a few hours. I had to get premeds for 2 hours and then the chemo for 2 hours and then 24 hours of after meds. Mostly fluids and nausea medication. I bypassed the ativan because I don’t like how drugs like that make me feel. I’m better in my normal state of mind.

During the chemo I had a terrible sensation in my nose that felt like burning and a headache but when it was over it all quickly subsided so I was very happy about that.

The hardest part is the needle in my arm for so long and until tomorrow. It hurts but if I keep it straight I can ignore it.

I was able to move a little, I walked with my sexy medicine pole around. If I go in the hallway I have to put on a gown and gloves and take them off when entering and wash my hands. I think its good that they are careful, I guess with this sort of thing a little overkill isn’t so bad.

They also did some very invasive checkups, I’ll spare everyone the details and revert back to my comment yesterday. My modesty is on a looooong vacation…

I facetimed  and talked to the kids. I think they are doing relatively ok. They had a few complaints about me being away but it was better than the various sad face texts I received yesterday;)….

So after today I’ve realized I have absolutely made the right decision here. First off, my MRI results from last night cemented this disease is aggressive and needs to be stopped very quickly. Secondly, my JC virus numbers are creeping up meaning I would not have been able to stay on Tysabri much longer. At the end of the day I am going to feel a lot worse before I feel better, but when I feel better it is going to be really awesome. I can’t wait.