I’ve been home for a few weeks so I thought it was time for another update…
Good News!-STILL no MS symptoms. It’s pretty exciting that with all the various things I was dealing with, I’m feeling not one of those. My vision has remained 20/20 in both eyes since the transplant which has been nice. I’m not sure I actually realized how blurry and messed up my sight was becoming until now when everything is so crisp and clear looking. My arm/hand numbness, tingling, trembling, and pain all have seemingly been eradicated by either the chemo or the stem cells, not sure which but I’m not questioning it:). Time will tell if these changes are sustained but everything is pointing to success at this point. In August, I will go back to Chicago and get MRI’s where we can really see definable evidence disease progression has been halted and every year following.
My bloodwork has been improving weekly and everything is looking as expected at this stage of recovery. As my numbers and things rise, I’m getting a little more energy everyday.
Not so awesome news- While I am feeling better from a strength perspective every day, the effects of the chemo itself have really erupted this week. My eyelashes are mostly gone which is very alien-esque looking and my eyebrows are thinning. I was told I can expect this for several more weeks. My nails were extremely damaged and brittle so I cut them very short in hopes they can regrow healthier.
I’m having a little trouble regulating my temperature but that is expected in the months after HSCT. I developed an allergy to the antibiotic I am to take the next 6 months. It is called a sulfa allergy or better known as very irritated unattractive rash all over my face/neck and some of my arm. So, let’s just say I’m laying low for the next week. Only bright spot is they discontinued the antibiotics which were killing my stomach so yay for that. At the end of the day, this stuff is all temporary and manageable where the disease was neither of those things so I’ll deal.
So all in all, things are going well and teetering towards normal-ish.
Hope everyone is having a nice week!
Jennie's MS Journey 
yay! been thinking about you and wondering when you’d send your next update. 🙂
glad things are going well, even with the not-so-awesome stuff. mice nuts relative to all the good stuff, right? 😉
let me know when you’ll be able to eat my cookies again!
On Wed, Mar 15, 2017 at 7:44 PM, Jennie’s MS Journey wrote:
> jenniesmsjourney posted: “I’ve been home for a few weeks so I thought it > was time for another update… Good News!-STILL no MS symptoms. It’s pretty > exciting that with all the various things I was dealing with, I’m feeling > not one of those. My vision has remained 20/20 in both ey” >
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Jenniiiieeeeee! I’m so happy that things are getting better for you despite the eyelashes business. You can get a pair at Sephora! No biggie! 😊
I hope you can feel my love and positive vibes I’m sending your way…boom!!!!!!! Keep your head up and keep being strong, beautiful you! 😘
xoxo
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Hello, Jennie, Matt and Family,
Wonderful to hear you are seeing the “Chicago miracle” at work! Vision, numbness, tingling — gone and all the emotional fear that you faced each day wondering lessening with each day!! WOW! Cherish this recovery as we continue to pray for your steady, and continued strength and patience! And a belated Happy St. Patrick’s Day to all! With our love! Liz, Roy and Family.
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